Phenomenology Study : Analysis of Support Group Holistic Needs among Patient with Chronic Kidney Disease and Family at Haemodialysis Unit in Semarang Central Java

Abstract

Background: The End Stage of Renal Disease (ESRD) or last stage of Chronic Kidney Disease (CKD) will affect to changes sufferers’ life. The changes experienced will alter their physical, psychological, social, and spiritual aspects. In addition, haemodialysis therapy that has been given to patients in their long life will affect to their quality of life. Social support is very essential for CKD patients undergoing haemodialysis. Social support can be given as an emotional support, esteem support, informational support, instrumental support, and companionship support. This support can be facilitated by health care team through Support Groups Holistic Therapy for patients and their family’s. Purpose: This study aims to identify needs of Support Group Holistic Therapy among haemodialysis patients, families, and health care team. Methods: This study was a phenomenology study design and recruited a sample of 12 participants with purposive sampling technique. Participants include of patients, family members, and health care team (nurse and doctor). Interview transcripts were analysis using Colaizzi methods. Result: As a results, this study has produced 7 themes : general patients conditions, patients need’s of support group holistic, family need’s of support group holistic, constraints of families for caring haemodialysis patients, family support that given to patients with haemodialysis, health care services support to haemodialysis patients and families, and need for support group holistic therapy on perspective among health care teams. Conclusion: Patients with haemodialysis and their family had an urgent need of holistic support group therapy because they had a comlplex problems (consist of physical, social, economy, and emotional problems). Health care team also want to develop this therapy because it will be very helpful for patients and families. This support group therapy is able to empower the patients and their families to have higher quality of life. We recommend that this therapy can conduct in the hospital, facilitated by health care providers. The time and materials for discussion should be adjusted to the patients’ haemodialysis schedule and their needs. Keywords: Haemodialysis, Family, Support Groups Holistic, Chronic Kidney Disease