Understanding the needs of professionals who provide psychosocial care for children and adults with disorders of sex development

Dessens, Arianne and Filho, Guilherme Guaragna and Kyriakou, Andreas and Bryce, Jillian and Sanders, Caroline and Nordenskjöld, Agneta and Rozas, Marta and Lotova, Violeta and Ediati, Annastasia and Juul, Anders and Krawczynski, Maciej and Hiort, Olaf and Ahmed, Faisal (2017) Understanding the needs of professionals who provide psychosocial care for children and adults with disorders of sex development. BMJ Paediatrics Open . pp. 1-6.

[img]
Preview
PDF
707Kb

Abstract

Objective Disorders in sex development (DSD) can be treated well medically, but families will encounter many psychosocial challenges. Promoting counselling to facilitate acceptance and coping is important yet equality of access is unknown. This study investigated the modalities of psychosocial care provided in centres of DSD care. Methods An international survey conducted among 93 providers of psychosocial care, identified through clinical networks, registries and professional forums. Results Forty-six respondents from 22 different countries filled out the survey (49%). Most respondents (78%) were based in hospital-based expert teams. Referrals came from paediatric endocrinologists (76%), gynaecologists (39%) and paediatric urologists (37%). Psychological counselling was most frequently given to parents (74%), followed by children (39%), adolescents (37%) and adults (11%) and was most frequently focused on coping and acceptance of DSD (54%), education (52%), the atypical body (39%) and genital (41%), decisions on genital surgery (33%), complications with sexual intercourse (29%), disclosure (28%) and acceptance of infertility (11%). Respondents most frequently observed DSD related confusion about gender (54%), acceptance of cross gender behaviour (50%), anxiety (43%) and sadness and depression (38%). Conclusions Most psychosocial care is provided to parents. It is assumed that parental support is important as acceptance is conditional to become affectionate caretakers. Although it may be more difficult for youngsters to communicate about their condition and treatment, providing opportunity to bring up issues that are important for them, is imperative. Clinicians and parents should be aware that parental and patients’ interests may not correspond completely. Psychosocial management should also include transition and adult care.

Item Type:Article
Subjects:B Philosophy. Psychology. Religion > BF Psychology
Divisions:Faculty of Psychology > Department of Psychology
ID Code:63884
Deposited By:Ms Siti Yuanah Psikologi
Deposited On:29 Aug 2018 14:45
Last Modified:29 Aug 2018 14:45

Repository Staff Only: item control page